Ten words that describe infertility

This post was written by Steve Wiens and the original post can be found on www.SteveWiens.com

Here are ten words I would use to describe how infertility feels:

1. Lonely. We saw couple after couple get pregnant before us, our best friends included. When they told us, we high-fived them, then we went home, and hardly knew what to say to each other. We felt lost, sad, and even lonelier than before. We were excited for them; we were just very sad for us.

It’s okay to go home and cry your eyes out when your friends get pregnant.

2. Exposed. Everybody wants to give you advice, and some people say incredibly stupid things. My favorite: “You just need to stop trying so hard!” Some people want to know every excruciating detail of what you’re doing to get pregnant. Suddenly, your most private details are the subject of casual conversation. Once people know you’re trying, people want to know how it’s going, if you’ve done artificial insemination, if you’d consider IVF, and how it felt in that small white room with the gross leather chair & the bad magazines.

It’s okay to avoid the question, smile, and change the subject. Keep as many things private as you can (except to a few trusted friends).

3. On Hold. We were always checking the calendar, wondering if we should plan that vacation, or that work trip, because what if we’re pregnant? Then we stopped doing that, because we would have never lived if we would have scheduled everything around a “what if.”

It’s okay to miss a month or two; you have to live your life. This is hard, but over the long haul, it will create more stress if you feel so trapped that you can’t plan anything. We even found that it’s good to take a month off now and then.

4. Invaded. For women, there are so many things entering your body (probes, needles, drugs) and so many people measuring your progress. Even sex, at the mercy of a calendar or a temperature reading, can feel invasive. The loss of control can almost merge into a loss of self.  But, it feels like once you’ve started down this road, there’s no stopping until you get pregnant.

It’s okay to say what you need, and it’s okay to shore up your boundaries in whatever ways you can.

5. Awkward. During one of the first visits where I was given the small cup and ceremoniously ushered into the small room, I actually ran into some people from my church afterwards. Of course they had their baby with them. I had a small cup that contained very personal contents with me. They asked, “What are you doing here?” I mean, what do you say?

It’s okay to laugh at yourself sometimes. And when someone catches you with your cup in your hand, that’s all you can do.

6. Angry. Unfair is the password that gets you into the infertility club. Mary tells a story of a friend asking her if she was angry with God. “No!” she blurted. “I’m angry at pregnant women!” She knew this was irrational, but she also knew that it was good for her soul to be honest in safe places. You actually may be angry with God, and you may need to find some safe places to be honest about that.

It’s okay to express the darkness, even the stuff you’re terribly embarrassed about, because it’s good for your soul. But in the right places, with people who can handle it.

7. Stressed. Even though it seems like a stressed out couple is less likely to get pregnant, The American Society for Reproductive Medicine finds that there is no proof stress causes infertility. Besides, trying hard to “not be so stressed about it” never worked for us. It also didn’t help to “just stop trying.” Everybody has a friend who was infertile for 73 years, and the day they stopped trying, they got pregnant. That never happened with us.

It’s okay to be stressed. Don’t stress about your stress. Trying hard not to be stressed is silly.

8. Despair. The cycle of hope and despair with infertility can take you out. I remember getting so excited when Mary was 2 days late, and just knowing that this time, it’s going to happen! Then, a few days or hours later, when she told me she got “it,” I would plunge into despair. The alternative is to temper your hope so that your despair doesn’t get so low. After about a hundred months of experiencing this cycle, we found that the best route is to keep hoping, and if it doesn’t happen, keep crying. It’s too hard to pretend that you’re not excited and that you’re not depressed. Be excited. Be depressed.

It’s okay to hope, and it’s okay to cry. Keep hoping and keep crying.

9. Loss. This was not how it was supposed to be. This was not what you dreamed it would be. And you don’t know how it will end.

It’s okay if you don’t know how to wrap your mind around your emotions. Be gentle with yourself for not totally having control of how you feel from moment to moment.

10. Ambivalence. Every time you have to go through another kind of treatment, you ask yourself: “Is it worth it? Do I really want it that bad?” And then in the very next breath, you are taken out by the sheer magnitude of how much you want a baby.

It’s okay to want and not want. That’s normal. 

If you’re struggling with infertility, it can be such a dark time. You have to be out loud with each other about what you need, and every journey will be different. You have to give yourselves permission to do this journey in whatever way makes the most sense for you.

Breaking the Silence Around Infertility

This morning on The Today Show, Alisyn Camerota opened up about her struggle with fertility and the solace she found by attending support groups and talking with women who were facing similar situations.  

The Today Show cited a national study conducted by the National Survey of Family Growth that found that 1 in 8 couples face infertility.  However, many say this subject is still taboo and face this often emotionally crippling struggle in silence and solitude.  

Cameroda says she didn't want to talk about it with her friends, her family, even her own mother.  "It's an embarrassing disorder . . . when I found a support group, it was the only moment that I felt solace." Cameroda confessed on Today.

A recent study from Harvard University's medical school found that support groups can more than double the chances of conceiving for women struggling with fertility -- from 20 percent to 54 percent.

"This information is incredibly encouraging in terms of the importance of emotional support," said Linda Applegarth of the Cohen-Perelman Center for Reproductive Medicine at New York Presbyterian Hospital/Weill Cornell.

Kesten Law offers a full spectrum of legal services for those working with Assisted Reproductive Technology (ART). If you are looking for an egg donation lawyer, sperm donation lawyer or surrogacy lawyer in Los Angeles or anywhere in California, please contact us via email at info@kestenlaw.com or 310.598.6428.  

To find a support group near you, contact RESOLVE, The National Infertility Association at www.Resolve.org. 

To view the segment from the Today Show, please click on the following link:

http://moms.today.com/_news/2011/02/24/6122759-alisyn-camerota-why-im-speaking-out-about-my-struggle-with-infertility